Have you always wondered what your endometriosis pain will be like in the future? I have too. I’ve been trying to seek out women who are further along their endometriosis journey to find out how their pain has improved, changed, worsened or vanished completely.
I’m starting off with the story of a 40-year-old woman who has had a hysterectomy for endometriosis pain. I hope you’ll find her insight helpful.
I’m looking to interview women who have experienced pain relief following the natural menopause, if you’d like to share your experience (anonymously) on my website please get in touch by leaving a comment. Your email address will only be visible to me and I’ll get in touch with you privately.
This interview represents just one viewpoint on endometriosis and does not mean that a hysterectomy means an improvement in symptoms for all women. As we all know endometriosis is subjective and everyone experiences it differently. Please speak to your doctor and consultant before considering any new treatment or surgery, they know you best and are best equipped to know your individual circumstances.
Here’s the interview:
How/when were you diagnosed with endometriosis?
I was diagnosed around about 2008, I had such painful terrible periods and was in severe pain, I was sent for a scan and found out I had cysts on my ovaries. They were only small to begin with, so it was decided not to do anything at this time, so off I went still in pain.
Towards the end if 2008 I just couldn’t function, I was in agony, I couldn’t work probably cause of the pain, I was doubled up in pain, I was sent for another scan and the cysts had got bigger, and that was when I was told I had Endometriosis, never heard of this before but I just knew it was extremely painful, walking was painful, sitting down was painful, because I had two children to look after it was decided to have my ovaries removed, I went for my pre-med and there was a note from the consultant saying he thought it was a good idea to have a full hysterectomy because within six months he would be having me back in to take out my womb.
How did endometriosis effect your quality of life?
Endometriosis stopped me enjoying life, for a few weeks I was housebound due to the pain and I would bleed really heavily so I wouldn’t want to go anywhere whilst like this. My husband back then didn’t understand and just went to work and left me to cope with my kids, this was extremely difficult, luckily my mum was very supportive and would help out as much as possible. I felt trapped and I thought this would never leave me, constant agony, heavy painful periods. I was so happy to be having a hysterectomy.
Were you able to start a family, what if any difficulties did this involve?
I was lucky cause I had three wonderful children before the Endometriosis started. So that was a blessing.
Could you tell me what your hysterectomy involved?
January 2009 I went in to hospital to have my hysterectomy, it was explained by the consultant that we agreed to have a full vagina hysterectomy , I said yes, and why I agreed to have a full hysterectomy was to get it over with because I’m a mum and my children needed me, so instead if going in for two operations I would just have the one.
It went well, stayed in overnight just to be observed. Was told not aloud to do nothing at all for 6-8 weeks, my mum came over everyday and looked after me.
I was put on a high dose of HRT, after a few weeks I started getting hot flushes, they would last seconds but would come n go all through the day but mainly at night was the worse, having to cope with a heavy pain in my tummy from the operation, then having hot flushes to was very difficult to cope with but I carried on. I noticed after a few months the flushes were easing off, I was starting to feel like me again. You ask about the menopause, I can’t answer that because I haven’t experienced it, they did say being only 40 I would have an early menopause but I haven’t yet.
What advice would you offer someone suffering from endometriosis now?
All I can say is after having the hysterectomy I felt like a new woman, no pains from anything , I was able to walk with out pain and return back to work, my periods had stopped which was fantastic, I had a new lease of life and I was going to live it, I went abit wild, my marriage was ending so I went if the rails because I was feeling so good it was great.
I’m not sure how I can suggest or comment with anyone who has endometriosis because mine was sorted out by the hysterectomy and it seemed all my scar tissue from other operations were on my womb and a lot on my ovaries so I think that’s how I got rid of it.
Only positive thing I can say is if it can be removed via an operation then go for it, your life would return with no pain and honestly you will feel like a new woman.