Looking for help with endometriosis?

Welcome! I’m Michelle and I’ve lived and worked with endometriosis successfully for seven years, and so can you with the right help. If you’re newly diagnosed (or waiting on diagnosis) here are some good places to start:

Endometriosis is hard work, but you can claw back some quality of life with the right support. Talk to me, I’m here for you.

 

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About endohope

My name is Michelle B. I've lived with endometriosis for eight years and Joint Hypermobility Syndrome for four. Trying to live and work with both illnesses as best I can.

4 responses to “Looking for help with endometriosis?

  1. sharon Tuggle

    Hello. My name is Sharon. I developed endometriosis when I was very young. I had laparoscopic surgery when I was 16 to remove it. I had an iud for almost five years. I got it taken out about a year ago my husband and were trying to have a baby. I am 25 now and have been married for 6 years. I am now back on birth control with a regular period. Every period keeps getting worse with more pain and flooding. I change tampons about every thirty minutes to an hour. My hot flashes are terrible. Its been very hard for me to eat. I don’t have an appetite and everything makes me nauseous. Even looking at certain food makes me sick. I don’t have anyone to talk to that understands.

  2. Ruth

    Your blog is extremely helpful. My daughter is in an endometriosis crisis at the moment.clotting, pain everything you describe plus plus and more. This is her second serious bout. She has already had a laporoscopy, some years ago…now is waiting for another…the wait is 3-4 months! !!! I am looking to get her to go private. But oh at what cost? £4000!!!!! Health insurance wont cover sn existing crisis. Why wont her GP see the urgency? The pain and anguish it is causing. Even the is a laporoscopy a cure? No not really. What is the solution?
    It really isnt taken seriously by the medicsl professionals….for them it is just painful periods…….no it isnt, it is far far worse. Where can we get proper professional help. I am Rebeccas mummy, pleading for advice and help

    • Sharon Tuggle

      I started taking a vitamin that seems to help. I’ve been taking one a day woman’s vitamin. It doesn’t take everything away. I still have pain and get sick to my stomach. When I found this in the Bible it helped me. In Mark 5:25-34 It talks about a woman who has a issue with bleeding which means her period. She was struggling with it for twelve years and she had suffered many things of many physicians and spent all the money she had. She put her faith in Jesus. That was her last resort. Its sorta been mine. For five years my husband and I didn’t have insurance and my hormones were all out of whack. I started Church and put it in God’s hands. He’s helped so much. I still have almost daily hot flashes and I am so emotional. I still have very heavy periods but God has helped me not to worry so much cause I realized worrying will make you so sick. Make you sick to your stomach and the pain will increase dramatically when you worry. It also helps to know that even a woman in the Bible went thru something like this and Jesus understood then as He does now. Its not as bad as when I had it when I was younger. Maybe getting older has helped. Tell your daughter not to give up hope. I don’t know her but I want to say I love her. Only girls with endometriosis know what we go thru.

  3. Tenaya M

    I have been struggling with my doctors and getting a real diagnosis. I know that there are so many things in the abdomen cavity that can be wrong but because my mom, aunt, and grandma all have endo as well the doctors just declared that I have it as well. It all started with an ovarian cyst the size of an apple 2 years ago. My doctors are unable to see anything on ultrasounds or ct scans and refuse to do a laproscopy because I want to have children. She makes it sound like that is the worst thing in the world but reading people experiences and talking to other people who have dealt with endo or cysts they make it sound like it was the doctors idea to do the laproscopy or that it’s not as bad as my doctors have been saying. I have seen several different doctors in hopes for different opinions but the general practitioners say they can’t make that coice and it took me 9 months just to get in to see a gynocologist for a meet and greet and I can’t seem to get through to her that my life is falling apart due to my constant pain. I’m on 4 different painkillers daily as well as taking vissanne which I have been on for almost a year now. It has done almost nothing besides screw up my periods making them heavier and extremely random as well as completely disgusting and not normal looking ( I don’t want to go into detail because they’re that disgusting.) I’ve tried so hard to get somewhere and it just feels like the doctors just keep holding me back or don’t care about how much this is ruining my life, I’m only 24 and I can’t even walk somedays it so bad. How can I get through to them? All I want to know is that everything that can be done has been done to diagnose me properly as it felt like they just brushed off diagnosing me since 3 other women in my family have it. Can you give me any advice on how to get something done? I’ve almost given up on trying to better my life because I can’t even get out of bed some days to make it to school and it’s destroying my young adult life. I don’t even have a social life anymore because I never know when I’m going to be in pain and over half the time the pain killers barely do anything.

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Endohope

My name is Michelle and I've been living and working with endometriosis for seven years. I hope to provide some hope for this illness through practical advice and discussion of this awful disease. You can read more about my story on my about me page.

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