The hardest concept to explain to people about endometriosis is the fact there’s a good possibility that I am not going to fully recover.
I have come to terms with this, in fact chronic pain management generally concedes that you will experience some pain going forward, and never be completely rid of it. However societal norms make the aspiration of “becoming well” the overriding goal of those around you.
This is because acute illness (illness that has a beginning and end) forms most of the understanding of an averages person’s understanding of illness.
Cruelly some can even relate to terminal illness better than chronic illness. There’s a arc to the illness that makes sense – that is finite.
As such as I hear many of the same platitudes I tend to hear time and time again from people. I want to talk to you very matter of factly about what I think about each of them.