For the last four years I have lived with a third, undiagnosed long term illness.
I have been getting sicker, and this had posed a new set of challenges and complications which could have possibly been triggered by treatment of my first chronic condition.
Living with endometriosis is one thing, but living with an unknown condition is equal parts terrifying, upsetting, frustrating and lonely. You can’t read up on condition websites, you can’t join support groups and there’s no treatment options until you have a name.
I want to raise awareness of the long-term limbo of being undiagnosed, as unfortunately having endometriosis seems to raise our likelihood of developing another long term condition.